SSP Health practices support NHS research

SSP Health practices support NHS research

All our practices work with the NHS National Institute for Health Research to promote research and offer our patients the opportunity to take part in ethically approved research studies.
Research has always been at the heart of NHS, mainly through hospitals; however, research will become standard practice within GP surgeries. 
Research allows the NHS to continually improve treatments and discover the best ways to prevent, diagnose and mange illness. Research also helps to understand how best to focus NHS resources.
Our patients may at times now be offered the opportunity to participate in medical research. 
Practices are involved in research in a number of ways, which may involve providing information from the practice database for a research organisation or it may be a site where research activity is undertaken. 
We may also identify which patients are suitable for a research study at one of our other sites. 
For more information on this and NHS research, please see these useful websites:
Learn more about participating in research on the NHS National Institute for Health Research website: https://www.nihr.ac.uk/…/how-we-involve-patients-carers-and…
Read how about research and general use of patient information here: https://www.hra.nhs.uk/information-about-patients/
If you want to find out about other research studies taking place close to where you live, visit the UK Clinical Trials Gateway and enter your postcode. Go to: www.ukctg.nihr.ac.uk
National research campaigns include: www.joindementiaresearch.nihr.ac.uk
Sign up to hear about what is going on locally, for example: www.citizenscientist.org.uk
You can Join a free, four-week online course to learn more about research here: https://www.youtube.com/watch?v=cFze7Oph7Hk&feature=youtu.be
Sign up to receive information about research studies you may be interested in here: www.researchforthefuture.org
You can join a public involvement forum here: www.invo.org.uk or www.csipublicinvolvement.co.uk

 

FARSITE 
Our practices are currently signed up to FARSITE, which provides a safe, convenient and effective way for GP practices to control the recruitment of their patients into clinical research, whilst allowing NHS-based researchers to run complex and powerful searches over population level health record data. All data is anonymous. For more details contact: www.nweh.co.uk/products/farsite

 

RCGP RESEARCH AND SURVEILLANCE CENTRE (RSC)
Our practices are also part of 260 practices in England contributing pseudonymised data for national research and surveillance.
This data enables continuous monitoring of infections and diseases in the community and is used in ethically approved research. 
The RCGP RSC is the main source of information for Public Health England (PHE) and helps with prediction and management of flu outbreaks and pandemics.
Providing pseudonymised data does not affect patients, their care or privacy, however, if our patients no longer wish to allow their information to be used, they should speak to their Practice Manager.

 

THIS PRACTICE CONTRBUTES TO THE CLINICAL PRACTICE RESEARCH DATALINK (CPRD)

Information in patient records is important for medical research to develop new treatments and test the safety of medicines. This practice supports medical research by sending some of the information from patient records to the Clinical Practice Research Datalink (CPRD).

CPRD is a government organisation that provides anonymised patient data for research to improve public health. You cannot be identified from the information sent to CPRD.

If you do not want anonymised information from your patient record to be used in research you can opt out by speaking to your doctor.

For more information about how your data is used visit www.cprd.com/public

 

HOW CAN THE PUBLIC OPT-OUT?
The public can change their national data opt-out choice via www.nhs.uk/your-nhs-data-matters or by calling the NHS Digital Contact Centre on 0300 303 5678.